Wednesday, June 26, 2013

Frustrated, but faithful

So tomorrow was supposed to be the very LONG awaited first surgery for our little Samuel. Well, once again, the surgery has been cancelled/postponed. This time was due to some abnormal blood tests. We went in for our pre-operation appointment 2 weeks ago and everything went fine. We had a simple blood draw to make sure Samuels blood was clotting fast enough, since oral surgeries tend to bleed a lot more than other surgeries and with all of the saliva, the blood tends to clot slower (all things we've learned in the past 2 weeks). We got a call the next day that his blood was clotting at a slower rate than what they were comfortable with and that they would like to retest in a week in case he just had a virus that was throwing the numbers off. So we went in last Thursday for another blood draw and within hours got the dreaded call that again the labs were abnormal. 
Today we saw a hematologist for the first time to first: determine what is causing the abnormal labs and second: to figure out a course of action to be able to treat this so we can proceed with Samuels surgery. 6 vials of blood and an hour and a half later, we left with a follow up appointment for one month. It will be next week before we have test results. So until then, we'll keep taping Samuels lip in preparation for surgery and enjoy our last little bit of time before his face is forever transformed. 
I have to admit, when we got the call last week that surgery was going to be postponed once again (since this has now happened 3 times, getting within a week of surgery to be told it is cancelled) I cried for a bit. I was so frustrated. Why does this keep happening? Our poor baby has been through enough with all this prep we were really ready this time. Yet throughout this week, Matt and I just continue to be reminded how perfect and amazing God's plan has been throughout this entire process. So we stand faithful, knowing that all of this is God's perfect plan for our Samuel and our family. In His time, it will all happen. 

So on a fun positive note we have some very good news to share!! Samuel was recently reevaluated by his therapist, and he did amazing!!! Shortly after bringing him home, he tested at about a 9-12 month level. This time, not even 5 months later, he was testing at almost 24 months in almost every area (with the exception of speech of course). Our big guy is just surprising us all the time at the strides he's making. He is truly a very very special gift that God has given us. 









2 comments:

  1. I love that you both never fail to find God's love and timing through all of this. God provides for the faithful and you and Matt have shown such trust in God through Samuel's journey. I have been so impacted by this entire journey and am so blessed that I get to share it as family : )

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  2. What AMAZING progress! Such a testament to the power of Love! I had his surgery date on my calendar and was praying around it. His ways are not our ways and His ways are always perfect! Praying comfort and encouragement as you wait! Love the pics!

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